Governor Proclaims 4P Wolf-Hirschhorn Syndrome Awareness Day 2022

WHEREAS, Wolf-Hirschhorn syndrome (WHS) is a genetic disorder caused by partial deletion of chromosome 4, also known as 4p-; major symptoms may include extremely wide-set eyes with a broad nose, a small head, low-set malformed ears, heart (cardiac) defects, and other physical disabilities; and

WHEREAS, children with 4p- syndrome are usually born with low birth weight and develop slowly, both cognitively and physically, compared to their same-age peers, and experience medical complications; and

WHEREAS, dedicated professionals conduct valuable research to explore new therapies and diagnostic tools to offer hope to persons with 4p- syndrome; and

WHEREAS, the 4p- Support Group estimates that approximately 1,000 individuals in the United States have 4p- syndrome, though many remain undiagnosed; and

WHEREAS, 4p-/Wolf-Hirschhorn Syndrome Awareness Day was created to increase research and understanding the syndrome, to advocate for effective diagnostic screenings, to support the development of improved therapies for early intervention and other necessary and critical treatments; and

WHEREAS, the State of North Carolina commends families, advocates, and caregivers of those with 4p- syndrome for their work in raising awareness of this disorder; we thank you for helping our medical community to advance the knowledge and awareness of this syndrome;

NOW, THEREFORE, I, ROY COOPER, Governor of the State of North Carolina, do hereby proclaim April 16, 2022, as “4P-/WOLF-HIRSCHHORN SYNDROME AWARENESS DAY” in North Carolina, and commend its observance to all citizens.