WHEREAS, Wolf-Hirschhorn syndrome (WHS) is a genetic disorder caused by partial deletion of chromosome 4, also known as 4p-, with symptoms that may include extremely wide-set eyes with a broad nose, a small head, low-set malformed ears, heart (cardiac) defects, and other physical disabilities; and
WHEREAS, children with 4p- syndrome are usually born with low birth weight and develop slowly, both cognitively and physically, compared to their same-age peers, and experience medical complications; and
WHEREAS, dedicated professionals conduct valuable research to explore new therapies and diagnostic tools to offer hope to persons with 4p- syndrome; and
WHEREAS, the 4p- Support Group estimates that approximately 1,000 individuals in the United States have 4p- syndrome, though many remain undiagnosed; and
WHEREAS, 4p-/Wolf-Hirschhorn Syndrome Awareness Day was created to highlight the importance of research and understanding of the syndrome; and to encourage support for effective diagnostic screenings and development of improved therapies for early intervention and other necessary and critical treatments; and
WHEREAS, the State of North Carolina commends families, advocates, and caregivers of those with 4p- syndrome for their efforts to raise awareness of this disorder, and for helping medical professionals to advance knowledge and awareness of this syndrome;
NOW, THEREFORE, I, ROY COOPER, Governor of the State of North Carolina, do hereby proclaim April 16, 2023, as “4P-/WOLF-HIRSCHHORN SYNDROME AWARENESS DAY” in North Carolina, and commend its observance to all citizens.