Governor Proclaims Smith-Kingsmore Syndrome Awareness Day 2023

WHEREAS, Smith-Kingsmore syndrome (SKS) is a rare genetic neurological disorder characterized by macrocephaly, intellectual disability, and seizures; and

WHEREAS, SKS affects children at birth and is often misdiagnosed or undiagnosed, delaying adequate and specific treatment necessary to support positive physical and intellectual development; and

WHEREAS, medical professionals and organizations dedicated to uncovering further information about SKS have contributed significant research over the years, helping families and others affected by this disease through the process of diagnosis and treatment; and

WHEREAS, there is still more research needed to fully understand Smith-Kingsmore syndrome; raising awareness can help drive funding and professional attention to help the many children and families living with SKS every day; and

WHEREAS, the State of North Carolina recognizes those organizations, medical professionals, volunteers, and many more who have dedicated their time and efforts towards learning more about Smith-Kingsmore syndrome and helping those affected live easier and more fulfilling lives;

NOW, THEREFORE, I, ROY COOPER, Governor of the State of North Carolina, do hereby proclaim August 15, 2023, as “SMITH-KINGSMORE SYNDROME AWARENESS DAY” in North Carolina, and commend its observance to all citizens.