WHEREAS, the 5p- Society of North America, along with support organizations from countries around the world, has designated May 1 – 10 as International Cri du Chat Syndrome Awareness Week; and
WHEREAS, May 5 has been designated internationally as Cri du Chat Syndrome Awareness Day; and
WHEREAS, Cri du Chat syndrome, also known as 5p- syndrome, is a chromosomal condition characterized by an intellectual disability and delayed development, low birth weight, weak muscle tone, microcephaly, a high-pitched cry in infancy, and potential medical complications; and
WHEREAS, Cri du Chat syndrome occurs in an estimated 1 in 20,000-50,000 newborns, and is found in people of all ethnic backgrounds; and
WHEREAS, individuals with Cri du Chat deserve to be recognized for what they can do versus what they cannot do, and this goal can only be achieved with increased awareness, support, and understanding of the condition; and
WHEREAS, a purpose of Cri du Chat Awareness Week is to end the outdated misinformation given to families when their child is diagnosed with this rare genetic defect; and
WHEREAS, children born with Cri du Chat will most likely require ongoing support from a team of parents, therapists, and medical and educational professionals to help them achieve their maximum potential; and
WHEREAS, the State of North Carolina encourages people to promote awareness, advocacy, and resources to support individuals with Cri du Chat and their families in our communities;
NOW, THEREFORE, I, ROY COOPER, Governor of the State of North Carolina, do hereby proclaim May 5, 2021, as “CRI DU CHAT SYNDROME AWARENESS DAY” in North Carolina, and commend its observance to all citizens.