Governor Proclaims Lissencephaly Awareness Day 2021

WHEREAS, Lissencephaly is a rare gene-linked brain malformation, causing the brain to have less or no ridges and folds, making it appear smooth; it is estimated about 1 in 100,000 individuals are born with this condition; and

WHEREAS, people living with this condition may also suffer from hypertonia, epilepsy, swallowing disorders, developmental delays, and other disabilities; and

WHEREAS, addressing complex medical needs early in life is imperative to helping families successfully care for their children at home; the need for more education, awareness, and support for families is desperately needed; and

WHEREAS, unfortunately there is no cure for lissencephaly; treatment can be directed towards specific symptoms, particular to each individual, and may require a coordinated response by a team of specialist; and

WHEREAS, Lissencephaly Foundation Inc., a nonprofit charitable organization that is committed to helping support these individuals through continued efforts of empowering families and educating communities, encourages organizations and medical providers to conduct further research into this complicated and devastating condition;

NOW, THEREFORE, I, ROY COOPER, Governor of the State of North Carolina, do hereby proclaim September 8, 2021, as “LISSENCEPHALY AWARENESS DAY” in North Carolina, and commend its observance to all citizens.