SMITH-KINGSMORE SYNDROME AWARENESS DAY
2024
BY THE GOVERNOR OF THE STATE OF NORTH CAROLINA
A PROCLAMATION
WHEREAS, Smith-Kingsmore Syndrome (SKS) is a rare genetic disease affecting children at birth and is often misdiagnosed or undiagnosed, delaying adequate and specific treatment necessary to support positive physical and intellectual development; and
WHEREAS, we recognize the many North Carolina medical professionals across multiple specialties that band together to support children in North Carolina living with Smith-Kingsmore Syndrome through direct care and engagement with new research; and
WHEREAS, medical professionals and organizations dedicated to uncovering further information about SKS have contributed significant research over the years, helping families and others affected by this disease through the process of diagnosis and treatment; and
WHEREAS, there is still more research needed to fully understand Smith-Kingsmore syndrome; raising awareness can help drive funding and professional attention to help the many children and families living with SKS every day; and
WHEREAS, the State of North Carolina recognizes those organizations, medical professionals, volunteers, and many more who have dedicated their time and efforts towards learning more about Smith-Kingsmore syndrome and helping those affected live easier and more fulfilling lives;
NOW, THEREFORE, I, ROY COOPER, Governor of the State of North Carolina, do hereby proclaim August 15, 2024, as “SMITH-KINGSMORE SYNDROME AWARENESS DAY” in North Carolina, and commend its observance to all citizens.
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Roy Cooper
Governor
IN WITNESS WHEREOF, I have hereunto set my hand and affixed the Great Seal of the State of North Carolina at the Capitol in Raleigh this fourteenth day of August in the year of our Lord two thousand and twenty-four and of the Independence of the United States of America the two hundred and forty-ninth.