Governor Proclaims Tuberous Sclerosis Complex Awareness Day 2024

TUBEROUS SCLEROSIS COMPLEX AWARENESS DAY

2024

BY THE GOVERNOR OF THE STATE OF NORTH CAROLINA

A PROCLAMATION

WHEREAS, tuberous sclerosis complex (TSC) is a rare genetic disease that causes non-cancerous (benign) tumors to form in vital organs, including the brain, heart, kidneys, skin, liver, and lungs; and

WHEREAS, an estimated 50,000 Americans and one million people worldwide have been diagnosed with tuberous sclerosis complex, a disease with no cure; and

WHEREAS, TSC is the leading genetic cause of both epilepsy and autism; and

WHEREAS, TSC affects some people severely, and others so mildly it often goes undiagnosed; and

WHEREAS, TSC can be the result of either a random cell division error or a gene change passed down through families; and

WHEREAS, depending on where the noncancerous tumors grow and their size, they can cause severe or life-threatening complications, including too much fluid in and around the brain, heart complications, kidney damage, lung failure, increased risk of cancerous tumors, and vision damage; and

WHEREAS, the incidence of TSC is as common as Lou Gehrig’s disease (ALS) or cystic fibrosis, so increased awareness is vital; and

WHEREAS, the State of North Carolina encourages residents to promote awareness of tuberous sclerosis complex disorder to ensure people with TSC get the best possible treatment and proper diagnosis;

NOW, THEREFORE, I, ROY COOPER, Governor of the State of North Carolina, do hereby proclaim May 15, 2024, as “TUBEROUS SCLEROSIS COMPLEX AWARENESS DAY” in North Carolina, and commend its observance to all citizens.

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Roy Cooper

Governor

IN WITNESS WHEREOF, I have hereunto set my hand and affixed the Great Seal of the State of North Carolina at the Capitol in Raleigh this ninth day of May in the year of our Lord two thousand and twenty-four and of the Independence of the United States of America the two hundred and forty-eighth.